October 18th

Wow! How do I begin!

All is good...MOM is GOOD. Getting better daily! She is not loving that her steroids have provided enough water weight to give her a cute and full chipmunk face, but she is appreciative that she is taking them for some health benefit amongst a myriad of other meds :).

We still don't get great sleep...maybe soon! Her scar is slowly disappearing under a mass of hair that is growing in (and it's very salt 'n' pepper), we've had a few good laughs about her silver status we are discovering.

So for some MEDICAL updates, Mom was approved for a new study that is brand new to the area and it's in phase 3, meaning that it's helping so many people and providing such amazing benefits to GBM patients that they want to test it on a wider range! The doctors have all been so excited that she was accepted as you have to meet very specific criteria.....

THEN....whomp. She didn't qualify anymore as of Friday. What a bummer! Here's why: She doesn't have enough tumor left to study....and we are UPSET!? What!? That's FANTASTIC NEWS....it also means she won't have a chance to take a drug that could reallly be beneficial and she will also been imaged LESS (MRIs, CT's etc.). We want her to be imaged!!!! We don't want that tumor creeping back without our knowledge (they will continue to image, just not as much).

WELL THEN Friday night, we hear that her radiologist, Dr. L* (name shortened to protect the innocent...ha!) spent his whole day fighting for her....and won.....if we could get her blood pressure down.

So that brings us to today. Her BP is up. Her stress level is at max. We had to make some tough phone calls about visitors and we basically decided to quarantine her. So we go in today for an mRI....things are looking the same....the EKG we have....also normal....the BP...still too high. At this point, mom and I are in the Cancer Care office, praying for a miracle. We have 1 hour to bring down her BP without medication. 10 diastolic POINTS!!!! Ahhhhhhh! No pressure.

Long story short, we prayed to the HEAVENS, turned on some MoTab, had the lady in the office turn off the TV, ate some snacks, rubbed her head and propped her feet up and prayed some more.....it took 45 mins and we got the number we needed. It was an absolute miracle.

She's back in the study. We promptly left amidst the congrats from the nurses and ate some Bruttles (ok, the Bruttles were for me) from the Davenport and now shes asleep.

SHE LOVES THE FLOWERS YOU SEND AND THE CARDS YOU WRITE!!! THE NOTES, comments and everything is majorly appreciated and as always...your prayers! Her name is on Temple Prayer roles allover the world and we FEEL it. We know it. OUR FAITH is stronger than ever. Many, many, many thanks. We are among angels.