Prognosis: Glioblastoma multiforme (GBM)
Outlook: Super Duper Hyper Positive
Chance of kicking it's rear: Oh, you better believe it. Consider this a warning little tumor.

Friday, January 28, 2011

January Update

Well, this is the longest we've gone without a post and it's time for an update!

Since our last post we have had bad days and okay days. We love okay days. But in reality, everyday is a great day because it's another day we get to have. We are sooo thankful for any progress and for your constant prayers. Seriously. We wouldn't be here without you and all your faith!

Since the beginning of January, Mom has recovered from gall bladder surgery and continued on a course to heal her digestive system. Her nausea and headaches haven't subsided much, but she has been able to keep down some chicken noodle soup once in a while. Mom has been existing on clinical grade nutrition shakes that she drinks 4-6 times a day (thank you Trotters!). She really would like to just eat a pizza, that will be a great day :).

She healed up quickly enough from the surgery to start her maintenance round of chemotherapy last Thursday. She takes it for 5 days and then gets 3 weeks off. This will go on for a number of months. She was also able to start up on the study again YAY! So as far as cancer treatment goes, she is back on track. In order to start the trial drug she needed to get another MRI and it came back totally clean! YAY!

I write this post today from the Cancer center in the Chemotherapy Suite, mom has been in getting fluids for dehydration. She's doing fine. We are just hanging out talking about life. :) It takes about 2.5 hours to get a full 'hydration' treatment.

I just want to thank all of you who have taken care of mom the last two weeks. I was able to go home and see France in CA and be a wife! To those of you who spent the night, took her to appointments, fed Kelsey and just kept mom company, thank you. You'll never know what it means to our family to have your help.

Again, thank you for your prayers. I cannot describe adequately in the English language (or any language!) what it means to our family. We love you and thank you so much.

Sunday, January 9, 2011

News

After the last post, much has happened. The euphoria we have felt from the tumor being gone has not been replaced, it has though, been dimmed a bit. In the next 48 hours we completed two more Gastronomical tests (totaling 5) and went into another surgery, this time to remove her "icky" gallbladder. The surgery went well and we were in and out in one day, and France was there to help (he is such a lovely trooper). We thought this would help, and it did to some extent, she had color in her face again and her stomach shrunk just a bit, but the symptoms and the burning in her stomach have remained.

Mom has not eaten properly in almost 6 weeks. She is existing on clinical grade nutrition shakes. 1 scoop, 6x's a day. If we are lucky she makes it to six. Once in a while she'll have a few bites of toast or maybe an 1/8 of a can of chicken noodle soup, but that's it. Eating is very painful and the progress we thought we would be making by now has been pushed back. She still is in bed, still in much pain.

I don't mean to be a downer, but sometimes life is much harder than other times and though we are having tough times, we count our blessings daily. She is alive. Her tumor is no longer present. Her family is doing well and we have our faith and our testimonies. So we may be a little cloudy here at the bird house and it seems when it rains it pours, but there's always a rainbow to look forward too. Please rainbow! Come quick!!!!!

If we could ask, yet again, for prayers and fasting, we would be eternally grateful. We have 5 different doctors working on the case, 7 bajillion prescriptions and homeopathic treatments we are working through and we are recognizing that we need one more thing, another miracle. We are discouraged, but hopeful, frustrated, but optimistic, but most importantly, we are continually grateful to our Father in Heaven for giving us the opportunity to pray and to ask for help.

Thank you for the love. -The Birds